*Play song, "Elsewhere" with this post
I sometimes wonder, though I try not to, and it is not that often, but I can not help it... and I think most mothers of a child with a chromosome abnormality could identify....... But, I wonder what life might be like for my sweet little girl if she had a complete pair of chromosome 18. What if that vital little piece of this most complex puzzle had never gone MIA...
I sometimes wonder, though I try not to, and it is not that often, but I can not help it... and I think most mothers of a child with a chromosome abnormality could identify....... But, I wonder what life might be like for my sweet little girl if she had a complete pair of chromosome 18. What if that vital little piece of this most complex puzzle had never gone MIA...
I see her running and climbing and jumping... I see her in the dance class I always envisioned, twirling around on her perfect little feet.
I see her perfectly understanding everything around her and not having to struggle for 90% of what she's use to.
I see her conversing as an almost 4 year old should, with us, her friends and anyone; and everyone understanding her perfectly, as she deserves.
I see her never being familiarized with the inside of a hospital room, or an ambulance. I see her not having scars from multiple surgeries and never having to endure as much pain as her body really never should have.
I see her never feeling left out of anything, or forgotten, or ignored because she does not have a complete pair.
I see her never feeling left out of anything, or forgotten, or ignored because she does not have a complete pair.
But, as I said that these moments are not very often, they also don't last long, because it doesn't take long before I remember that this is the way that she was sent to me, this is who she is. And really when it comes down to it, I wouldn't change anything about her, because simply put,
she
is
amazing
And I and everyone who loves her are better people simply because she exists. I only wish she didn't have to suffer so much... that I didn't have to worry about things like her having an allergic reaction simply from just walking into a room.
So, I admit something that is hard for me to admit, but I know she is my girl, and she is just the way she is supposed to be...
crooked
feet
and all.
crooked
feet
and all.




3 comments:
She is amazing. And I know how you feel. I felt the same about Emily. And now it amazes me that Lily can do those things. And I love it, but wouldn't have changed Emily for a second!
Cooper has a few of the "baby signing time" videos that he likes to watch but since we are staying at my in-law's house right now I was letting him watch a few of the song clips on You Tube today. Anyway I came across a song I hadn't heard before but it made me think of you, especially as I had read this post earlier today. Maybe you've heard it before but it was called Caterpillar Dreams. I don't know if the link will work but if not you can just search you tube for it: http://youtu.be/gGF3iC0o_1s. It's a sweet song about amazing kids like Emarie :)
It's never wrong to wonder. It's wrong to hate what you can't change.
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